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April 13, 2019

“It’s not what you look at that matters, it’s what you see.”  Henry David Thoreau

My son Louie is 18 years old and lives with blindness.  Recently he was speaking to a school group of a couple of hundred kids.  The kids asked all kinds of questions about blindness, what...

March 1, 2019

I’m the one who falls in love with the stars and I can’t reach them

And You get to sit next to me reading them with your fingers

Each raised dot another galaxy I won’t ever reach

But isn’t it you who should be pitied?

You can’t see what wonders you touch

Yet we all know tha...

October 29, 2018

About a year ago, I approached my parents and told them I wanted to do the Ironman, a one-day race that consists of a 2.4-mile swim, a 112-mile bike ride, and a full 26.2-mile marathon. I was just 17 years old, had no experience as an endurance athlete, and I am signif...

October 2, 2018

“The most important thing in life is to stop saying ‘I wish’ and start saying ‘I will.’  Consider nothing impossible, then treat possibilities as probabilities.”  Charles Dickens

I am 18 years old and I have a regressive eye disease that is stealing my vision. I am...

September 25, 2018

“The great challenge of adulthood is holding on to your idealism after you lose your innocence”           Bruce Springsteen

DIFFICULTY.

My son, Louie, is in the final weeks of training with his guide Milan for the 2018 Louisville Ironman.  The Ir...

June 9, 2018

Hello I am Carmella McGee, I’m 14 years old.  My brother/partner in crime, Louie, is 17.  We are members at Gloria Dei Lutheran Church in St. Paul.  We’ve been navigating the world of black and light together for the past 12 years.  When Louie was 5, he was diagnosed w...

May 23, 2018

“Long live the pioneers
Rebels and mutineers
Go forth and have no fear . . .

It's our time to make a move
It's our time to make amends
It's our time to break the rules
Let's begin” 

X Ambassadors   Renegades

Last night I was at the X Ambassadors concert here in Minne...

April 25, 2018

Over the past year I’ve had the opportunity to watch (and sometimes help) my 17 year old son Louie create and launch his very own non-profit Louie’s Vision (www.louiesvision.com).  Now to be clear, he didn’t really set out to create a non-profit, but to create an organ...

April 12, 2018

When I was 11 we got our first tandem bike (we're juggling a few right now).  My parents were imagining nice family bike rides with one of them leading me on the front.  As kids, my sister Carmella and I were not imagining the same thing.

We were finally prese...

January 30, 2018

I watched as the young man, a teenager, ran from one side of the campsite to the other, one arm held out in front in a defensive posture, the other waving above his head with reckless abandon. He was yelling in mock-exhilaration and his friends howled with laughter.

He...

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