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October 29, 2018

About a year ago, I approached my parents and told them I wanted to do the Ironman, a one-day race that consists of a 2.4-mile swim, a 112-mile bike ride, and a full 26.2-mile marathon. I was just 17 years old, had no experience as an endurance athlete, and I am signif...

October 2, 2018

“The most important thing in life is to stop saying ‘I wish’ and start saying ‘I will.’  Consider nothing impossible, then treat possibilities as probabilities.”  Charles Dickens

I am 18 years old and I have a regressive eye disease that is stealing my vision. I am...

May 23, 2018

“Long live the pioneers
Rebels and mutineers
Go forth and have no fear . . .

It's our time to make a move
It's our time to make amends
It's our time to break the rules
Let's begin” 

X Ambassadors   Renegades

Last night I was at the X Ambassadors concert here in Minne...

April 12, 2018

When I was 11 we got our first tandem bike (we're juggling a few right now).  My parents were imagining nice family bike rides with one of them leading me on the front.  As kids, my sister Carmella and I were not imagining the same thing.

We were finally prese...

July 25, 2017

I wrote this poem about how sighted people use blindness as a metaphor for so many things when there are huge inherent misconceptions about blindness.  Often, people assume you cannot see anything or it’s all blurry.  This is wrong.  There are wide spectrums of sight a...

May 29, 2017

I just read that blindness is the third most feared physical condition after only Cancer and AIDS.  I’m blind, but I’m not scared.  Most kids with blindness are not scared.  I’m sure that number would be completely different if you only surveyed those with blindness....

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